Stories and shared lived experiences fostering connection, advocacy and hope across the European heart community.
Stories and shared lived experiences fostering connection, advocacy and hope across the European heart community.
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In 1993, at the age of 34 – I had just become a professional officer of the German Army and a military career in mind. I felt something in my chest, but didn’t pay too much attention to it, didn’t li…
In 1993, at the age of 34 – I had just become a professional officer of the German Army and a military career in mind. I felt something in my chest, but didn’t pay too much attention to it, didn’t li…
I have had severe hypertrophic cardiomyopathy since birth, an incurable and progressive genetic condition that causes an abnormal thickening of the heart muscle. I had to learn from a very young age…
I never imagined that after a lifetime of annual medical check-ups, something congenital would suddenly be discovered at the age of 54 and change the way I see my health — and my responsibility towar…
I have managed to live a normal, fulfilling life. But even as I survived, and even thrived at certain times, the psychological toll we paid as a family was unfathomable.
One of the hardest parts of my heart failure journey was being a mother and having to explain to my children that I’m different now. I can’t do what I used to do.
I’ll never be able to thank my donor and his family enough. The best way I can honour them is by living the best life possible. I hope that I made them proud.
Three days after my baby was born, I was diagnosed with severe heart failure — my heart was functioning at just 18%
Three days after my baby was born, I was diagnosed with severe heart failure — my heart was functioning at just 18%
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